Friday, December 14, 2012

Developmental Clinic, Hearing test, and Neurologist visit

Weight Check

William – 23lbs 2oz
Aaron – 22lbs 6oz

We've had three fairly significant appointments in the past two weeks, so I thought I’d post about those now rather than waiting until the end of the month.  We will be super busy with Christmas and getting ready to move!

Developmental Clinic

We have been to developmental clinic several times now, but this is the first time we've done the Bayley Scale of Infant development.  The boys were exactly 14 months adjusted the day of the test, so ideally they would score at 14 months for each category.  They were visited by the occupational therapist, speech therapist, and physical therapist, and asked to do a bunch of activities like stacking blocks, point to certain items, and color with a crayon.  Stephen was with Aaron during his testing, so I’m not sure exactly how he reacted.  I was with William, who was being a little stinker the whole time.  First of all, they undress the boys and sit them in a highchair in their diapers, which is completely unnatural for them.  With William, they started by putting a bunch of toys on the highchair tray and asked him to pick up the baby, spoon, cup, ball, or book.  He was first asked to pick up the book, and instead picked up the cup and ball, and was fixated on showing the therapist that he can put the ball in and out of the cup.  Then, when the next therapist came in and showed him a book with pictures, he was asked to point at a picture of a book – he immediately looked at the book they had taken from his highchair and placed on the table, but wouldn't point at the picture of the book she was holding…I’m surprised he scored as high as he did with his lack of cooperation, but almost everything they asked him I KNOW he can do at home.  Because of this, I take the results with a grain (or ten) of salt.  The only score that I completely do not agree with is Aaron’s expressive language – he does say mama and dada, and a few animal sounds (and since the appointment he has been saying bye bye and hi), but he was scored at an age that isn't supposed to be saying any words at all.  So they got that one wrong.  However, we do agree that he could benefit from speech therapy, which we've already discussed with our early intervention program. He’ll be evaluated when we move to Hanover and start in their program.  We will also have Hanover evaluate William for speech and occupational therapy based on these results, as it’s better to be proactive, but I’m not 100% sure they’re needed.  After that test, I’m not completely sold on the value of the developmental clinic since they only see the boys for 15 minutes every few months – they surely can’t know my kids and everything they can do.  The early intervention program seems to be much better for that purpose for us.

Here are the results:

Cognitive: William – 12 months, Aaron - 14 months
Fine Motor:  William – 13 months, Aaron - 15 months
Gross Motor:  William – 14 months, Aaron - 14 months
Receptive Language:  William – 14 months, Aaron - 16 months
Expressive Language:  William – 12 months, Aaron – 8 months

Hearing Test

Because they were born so early and had the brain bleeds, the boys are at risk for progressive hearing loss.  As a result, we were expected to follow up with the audiologist every 6 months or so until they turn 3.  The guidelines have changed, however – they just need to pass one diagnostic test and one follow-up before they are 2.  The boys have now PASSED the diagnostic test and two follow-up visits, so they are good to go.  We will still see the ENT because of Aaron’s tubes, but have crossed the audiologist off of our list.  (Yay)


I am a huge fan of our neurologist.  From day one, he has given the most realistic and grounded insight and advice regarding the boys' brains and potential future delays (or, in our case, probable lack of future delays J ).  It is his job, of course.  Based on the boys' activity and reflexes he saw in his office – standing, walking, playing, talking, he sees no real potential for future disabilities due to the brain bleeds.  He will see them one more time when they turn 2, and then we should be able to remove him from our list as well.  They may still have some issues with more of the fine motor dexterity based on the location of the brain damage – may not be future piano concerto players – but only time will tell. 

William and Aaron continue to be happy, loving, playful little boys who seek attention and affection.   We couldn't ask for anything better this Christmas!

William & Aaron

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