Saturday, January 28, 2012

7 Months!

Weight Check
William - 15lbs 7oz
Aaron - 15lbs 2oz

The boys are 7 months old as of yesterday! 

We did make progress with the physical therapy.  Our current PT through Early Intervention will come to the house weekly for William, and Aaron's schedule will remain at twice a month.  I did express my concerns with the PT itself, and it should be better now that we have a more open line of communication. 

Otherwise, the boys have continued to remain healthy throughout this mild winter.  Our appointments haven't started to lessen yet, but hopefully they will soon! 


W & A
William & Aaron





Saturday, January 14, 2012


We have added a new word to our vocabularies, and a new specialist to our repertoire.  According to the American Academy of Physical Medication and Rehabilitation, "physiatrists, or rehabilitation physicians, are nerve, muscle, and bone experts who treat injuries or illnesses that affect how you move."

Per our pediatrician's recommendation, we brought William to the physiatrist at Children's Hospital last week.  He actually was not concerned about the tightness in William's legs and thought his tone was good.  He did place an order for our PT to increase from twice a month to once a week, and will follow up in May.  I'm waiting to hear back from our current physical therapist if this is something she will do, or if we will need to take him to a private practice.  Our PT is through Early Intervention, and at this age they typically only see babies twice a month at most.  If we do need to switch to a private company, I'll need to make sure that both boys are receiving the same service, since the order was technically only for William.  While I don't really want to add more appointments to our calendar, I am happy to have the physiatrist manage the PT and follow the boys' progress.  We still want to move into Hanover at some point sooner rather than later, which would move us into a different Early Intervention area, so it will be good to have someone who will be consistent.

Our regular PT visit this week was better than the past.  She was a little more interactive with the boys, and brought a medicine ball for them to use, to practice tummy time and gravitational changes.  I like the ball, it's kind of fun for me as well as the boys :)  I did tell the ladies (both PT and the Early Interventionist visited) that we were taking William to Children's, and they knew right away that an increase in PT would be recommended.  They basically said that the doctors there don't understand that they are leaving us with all of the tools do to the PT ourselves at home, and that it's the PT we do that will make the difference.  I understand this, but again, I want PT to be more hands-on, and I want to be as proactive as possible. 

So that's where we are right now :)  We have a pulmonologist appointment next week, and then the neurologist and developmental clinic in early February.

Thursday, January 5, 2012

Happy New Year!

Weight Check
William - 13lb 9oz
Aaron - 12lb 13oz

And a Happy New Year it is!  The boys are now 6 months old (3 months adjusted).  William is now completely off of the supplemental oxygen.  We have another pulmonologist appointment in two weeks, at which point they will hopefully let us give back all of the equipment! I do want to keep the apnea monitors as long as we can.  I've heard from a few people that apnea monitors are a pain, but ours very rarely goes off due to a bad connection, and they have never had an actual apnea spell since being home.  The monitors give us peace of mind while they are sleeping at night that everything is okay.  

The physical therapist currently comes to our home twice a month.  I have had concerns specifically with William's tightness and have received just one stretch from her to do with him.  She believes the boys to be right on track for where they should be, which is great, and really just comes and sits at our house and watches them or holds them for a few minutes.  Anyone who knows me would know that this is not enough for me.  I want to be as proactive as possible with the boys given their risk for cerebral palsy.  PT in the NICU was great - they gave me feedback on specific areas that were tight when they were there, they stretched the boys at each visit, and they always gave me things to do on my own with them.  My plan was to wait until we see the NICU physical therapists again at the developmental clinic next month to discuss this in more detail, and what exactly I should expect from PT at home.  However, our pediatrician also took note of William's tightness and immediately referred us to Children's Hospital so that he can be evaluated further.  Great!  We have an appointment next week.  They should be able to better help us if either of them need orthotics or positioning devices in the future.  The tightness is typical with babies born so young, and doesn't necessarily mean anything, but could lead to difficulty or pain when learning to walk, and tip-toe walking.  The earlier we work on it, the better.

William and Aaron are such good babies.  They're both smiley and happy boys. With Anna, I cringed when people asked if she was sleeping through the night yet (she didn't until she was 1!).  The boys are now out by 11PM and up around 7 in the morning!  I didn't think such a thing was possible :)  

Thank you again to everyone for keeping up with the boys' progress and keeping them in your prayers!

Merry Christmas from William & Aaron!

Aaron & William

Tummy Time!  Aaron's head is's hard to catch them both up!