Today has been a mixed bag of news.
In the good/funny news for the day, William does NOT have bilateral inguinal hernias. The doctors and nurses have been checking him every day to make sure the "hernias" were able to be pushed back out of the scrotum. Surgery was scheduled yesterday for next Friday, and the surgeon came out today to examine him. He does have hydroceles, which are accumulations of fluid that they say will go away on their own. He does not, however, have intestines pushing out of those openings. So what have they been "reducing" every day, you may ask? His testicles. Final diagnosis? Our boy has balls... no surgery needed.
Both boys latched and ate from me today, which was excellent. All of the practicing is paying off! In the past two days, it's like the lights just came on.
William has been exceeding expectations within the past week, passing his trial for feeding tube removal and for being in the open bed. Aaron, though, is now not gaining weight at the rate they'd like to see. Both boys still have enlarged livers, so the doctor has ordered a few more tests tomorrow to make sure that it's due to the CMV virus and nothing else. The doctor is also now saying that the tests have changed, and the positive result is definitely positive, but William may still have it although testing negative.
There were a few more details from today that I can't think of right now, but that's the gist of it. Aaron's progress is slowing down a bit, and William's is increasing, so the updated time frame for them to come home is in 2 weeks - together!
Showing posts with label cmv virus. Show all posts
Showing posts with label cmv virus. Show all posts
Saturday, September 3, 2011
Thursday, August 25, 2011
We've confused the doctor
Weight Check
William - 3lb 12.8oz
Aaron - 3lb 9oz
Today has been mostly good for both boys. William did have a small episode this morning, then a larger one tonight. I've come to expect those, although we really want them to stop. He did take a full bottle this morning with Stephen, though, so that was a first for him. Aaron continues to do well, on low oxygen requirements, and able to eat a good portion of his feeds through the bottle.
In interesting news for the day, one of the boys did test positive for the CMV virus. I only saw the doctor in passing, and she didn't recall off-hand if it was Aaron or William. The interesting part is that the other one tested negative. The only reason they were tested was because of the abnormal liver screening, and the expectation was that the cause would be the same for both of them. The doctor was confused that only one would have it, unless a) the test results were inaccurate or b) the CMV virus has nothing to do with the current liver issue. She also said that she almost wishes they hadn't tested for it, as the knowledge will cause unnecessary worry. This virus, while I had never heard of it before, is apparently incredibly common. Up to 75% of the American population has it. He probably got it from my breast milk, meaning that I have it, or potentially (but not likely) from the blood transfusion. She does not believe he contracted it in utero, which would have serious neurological side effects. Many of the things I've read on the virus's effects on preemies are not positive, but I will trust the doctor's judgement that those things don't apply to our boys.
William - 3lb 12.8oz
Aaron - 3lb 9oz
Today has been mostly good for both boys. William did have a small episode this morning, then a larger one tonight. I've come to expect those, although we really want them to stop. He did take a full bottle this morning with Stephen, though, so that was a first for him. Aaron continues to do well, on low oxygen requirements, and able to eat a good portion of his feeds through the bottle.
In interesting news for the day, one of the boys did test positive for the CMV virus. I only saw the doctor in passing, and she didn't recall off-hand if it was Aaron or William. The interesting part is that the other one tested negative. The only reason they were tested was because of the abnormal liver screening, and the expectation was that the cause would be the same for both of them. The doctor was confused that only one would have it, unless a) the test results were inaccurate or b) the CMV virus has nothing to do with the current liver issue. She also said that she almost wishes they hadn't tested for it, as the knowledge will cause unnecessary worry. This virus, while I had never heard of it before, is apparently incredibly common. Up to 75% of the American population has it. He probably got it from my breast milk, meaning that I have it, or potentially (but not likely) from the blood transfusion. She does not believe he contracted it in utero, which would have serious neurological side effects. Many of the things I've read on the virus's effects on preemies are not positive, but I will trust the doctor's judgement that those things don't apply to our boys.
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